DESI
"I don’t have an inspirational figure. Nothing. I've given up hope. I'm afraid, I have a disease that has yet to be cured for me, I'm worried, that my sickness is disrupting my family and I don't want that to happen."
Translated from Bahasa Indonesia
Introduction
Hello, my name is Ketut Desihani. I'm 14 years old, I'm in the seventh grade of Junior High School, and I go to Pemecutan Junior High School. I'm from Karangasem, the younger brother of Komang Alan. My family lives here.
Moving to Bali Street Mums
I used to go to Bali Life (school), and then I stopped going there. Ibu Kim brought my family to Bali Street Mums and my mother was given a job. I was offered to go to a new school. I used to live on my own and my rent was paid for by Ibu Kim, and then I moved here to Bali Street Mums.
Happiness
I am most happy here. I have many friends and they’re friendly to me. The other people here are also cool, there are young children so it's lively and there are events. For example, on August 17, there are guests who come to visit us, and give us donations.
Challenges
I want to recover from my illness. In 2021, I found out it was a tumor on the outside of the abdomen, in the uterus. If I had surgery with everything removed, I was told that I would become paralyzed. So with that information, Ibu Kim didn't allow me to follow through with the surgery.
It was nothing, it never hurt or anything. It's just that my belly got bigger, I thought I was pregnant. Then I went to the doctor. The ultrasound turned out to be a tumor. It was immediately referred to a nearby hospital. A recent doctor told me to do chemotherapy, but I didn't want to because was in school.
Happy Memory
When I was with my friends, they supported me during the surgery and gave me lots of encouragement. I was there with my family because, in the past, my family and I rarely got together. But now I'm close again. My father is often violent to me. At the moment he’s in my hometown village. He doesn't live with me anymore.
Inspirational Figure
I don’t have an inspirational figure. Nothing. I've given up hope. I'm afraid, I have a disease that has yet to be cured for me, I'm worried, that my sickness is disrupting my family and I don't want that to happen.